Thursday, July 23, 2020

Quarantine Diaries - Part 13: The Couch, YouTube and Deep Space 9



As you may or may not know; we watch a lot of Star Trek around here but lately in-between the Star Trek re-watches, I have been watching a lot of those reunion panels, like Stars in the House, Reunited Apart and The 7th Rule's Virtual Trek Con (links at the end of this post) on You Tube.

All are not Star Trek Related (The 7th Rule is of course), but I have seen reunions of some of my favorite shows, such as the China Beach reunion.

They are fun and I am sort of in awe of the people on these panels who come and do these things daily for free to raise money for virus-related charities and just to give us all something new to watch during this pandemic.

DC is normally on his Ipad in his "spot" in the kitchen while I am watching these.

Last night, he decided to pack it in early and went to get his pillows, blankets and books to bring to the couch (yes, we are still sleeping on the couch. This may be the longest stretch to date. See: The Couch: Another Round from 2019)

I was watching Reunited Apart - The Lord of the Rings Reunion. I could see that DC was getting anxious. I asked him more than once what was bothering him.

"Nothing wrong!"

But he made a big production of announcing when it was over.

I moved on to Stars in the House - RENT with Adam Pascal and Anthony Rapp and he became more anxious.

Me: Please tell me what is bothering you.
DC: Nothing bothering you.
Me: (re-wording my question) Please tell Mom what is bothering DC.
DC: Watch "Space Nine"
Me: You want to watch Deep Space Nine?
DC: Yes!

So I put on Deep Space 9 and DC happily took his glasses off, rolled over and went to sleep!?!?

After thinking about it for a little while (because you know that's what I do); I could see that there were one of two possibilities for his anxiety here.

1. You Tube is his domain. He may not have ever realized that I was watching HIS You Tube on the TV and you know how protective he is about what's his.
or
2. Deep Space 9 comforts him when he is going to sleep.

I hadn't thought about that.

I may just be watching Deep Space 9 often when he is ready for bed. Because it is my favorite of the franchise, I watch it and pay attention. 

I use TOS and TNG  as a distraction from my "mind race" so I can fall asleep. I need something to distract me, but not distract me enough to keep me awake and since these are far from my favorites, it doesn't matter if I fall asleep and miss the four episodes that play until Nextfix shuts down. He is not awake for that. He falls asleep to the one I am awake and paying attention to.

I don't know which possibility was the cause of his anxiety, but I am thinking it was a little of both.


Links:
Josh Gad - Reunited Apart


*******************
In case you are new here: “I tell stories, most of the time; single individual stories about this or that. Some may be written with humor and some may come across as “Oh, look at the cute thing DC did or said” (he does crack me up at times) but my object is always to make people understand how his mind works, never to "make fun of him"
It is difficult to explain “his” autism to anyone without resorting to 1000 examples and 1000 stories. So I tell 1000 stories to make clear that there are other sides to autism than the characters seen in TV or movies."
This blog is used for shorter posts, off topic posts and also for longer Face book statuses. Please visit my official blog site at: Taking it a Step at a Time 






 

Friday, July 17, 2020

Quarantine Diaries - Part 12: Strictly from Facebook Posts






 I realized that I haven't written anything since May.

There has not been much going on, but then again there has been a lot going on.

I don't know if that makes sense.

We're still home.

We're still bored.

There is nothing to do yet there are new things to do - different things to do.

I don't know if that makes sense. 
****

His day program began doing zoom meetings daily. At first, because they were new, he was interested in participating, but after 5 days of non structured/free-for-alls, he opted out.

DCs first zoom meeting with his day program. He made it through the whole thing
 
How many times does one have to answer "What have you been doing during quarantine?" and nothing else? It gets old.

His Winter Guard team made a few stretching and dance videos (the dance video is a secret)

I was amazed at how willing he was to get up and follow along as he was/is getting pretty used to "playing computer" or ipad.

What a great idea on this rainy day! DC doing his Winter Guard stretch/warm-up!



Speaking of rain....
We had a two week run of thunder storms almost daily. Just what we needed for the already anxious guy who has been stuck home for months.

“Vick-eeee, I’m getting very nervous about this”
First clap of thunder and he’s positioned himself in front of the door so he knows when it’s coming, I guess.


He’s positioned himself (with iPad) in front of the door watching for the coming storm (I don’t know why this makes him feel better, but it does) while insisting that there is:
#NoStormToday


He discovered additional uses for his band-aids and scotch tape:

I don’t know what the problem is under that mass of band-aids and scotch tape, but he says his earbuds were broken.#1001UsesForBandaids


His "fix" actually worked but I ordered him some new headphones anyway.

DC, still drinking his orange juice from breakfast...
“Lunch is coming soon”
The time between the meal and asking for the next meal is getting shorter and shorter.
 He's ventured a little further away from his "watch over and over again"  Disney and other favorites, but as we know - Everything Is (Still) Related:

You all know that DC is stuck in his own cycle of television shows and movies. When he does gravitate to a new show, it is usually because I am watching it (and as much as I don’t think he’s paying attention, it turns out that he is) AND he sees an actor he knows from one of his 100s of favorite movies. He never comes to them on his own. Over the last week or two, when he’s not watching Grace and Frankie or New Girl, I noticed him watching Arrested Development. I have never watched that - ever. I couldn’t make any connections in my head as to why he was watching it; I mean it probably would have helped if I had ever seen it, but I knew some of the cast. So I asked him.
“Mr. Magorioum’s Wonder Emporium”
I had to think about it for a minute, but he is correct.
Jason Bateman.
#EverythingIsRelated

 Sharing took on a new spin:
Every day when DC opens his little snack bag of gold fish crackers, he comes directly to me and hands me 2 (only two) fish.
Then he says “thank you for sharing” and moves quite quickly out of the room.
He knows that it’s nice to share, but I guess he wants to be sure he gets the credit for sharing without really giving up any of his snack.

I was upgraded, downgraded and upgraded again.

Last week I was upgraded to THREE goldfish but alas, it did not last and I was demoted back to two. Today I was again upgraded to 6 (he delivered two at a time)! I have to imagine he is buttering me up for something! #ThankYouForSharing
I had a zoom meeting with his program too. 
As you have read, DC has done a few things on zoom over the last few months. Other than setting it up for him and sitting next to him off-screen... I have not.
Yesterday was my first zoom meeting with his case worker and his day program, both of which I only ever speak to in person or on the phone. What I have to remember for next time is that they can see me when I’m rolling my eyes.😳
 Another Holiday In Quarantine:

DC, grasping at straws (or trying to make the best of another pandemic holiday) made sure he chose the red, white and blue straws for his juice this morning. He put on the red white and blue beads he got at the camp parade last week and is now searching his 100’s of markers for just the reds and blues. It looks like he will only be writing his “princess papers” in red and blue today (between screeching “Happy 4th of July! Yes!” at random intervals of course )
Happy 4th!
Hamilton:

There are and have been times when I have forced DC to do something, only because he would never do anything but "play computer" if I did not. I like for him to at least TRY things to see if he will like them. If he doesn't, he doesn't, but I want him to try.

Watching a musical is one of DC's favorite things but....

Hamilton? 

It's not Disney.

It's not related to Disney ( I forgot about Mary Poppins Returns, which DC was quick to point out)

I wasn't sure he would get in to it.

But, I tried.

He was not happy that he had to leave his iPad.

He sat down begrudgingly in the living room.

So it took until the girls came out with their “twirly” dresses for DC to get into watching Hamilton, but he is officially IN TO IT now.
He LOVED it. He was up dancing all the way through. I find him looking for clips on you-tube.
Sometimes Mom does know best.

The one and only thing DC was disappointed in about Hamilton was that they did not have the standard curtain call that he is used to (and loves). I have always said, if someone could come up with an entire musical made up entirely of curtain calls - he would be in heaven. I went searching to see if the one we saw was the norm.
What I found.... The West Wing theme during the original casts' last performance (Lin-Manuel Miranda's favorite show, which I did know - which also happens to be my favorite show)


Oh! We recorded a new Quarantine Song:

DC had a hard time with this one. He thought it was hilarious and wanted to do it, but he got so serious trying to get the words right that I asked him more than once if he was having fun. If he wasn't, we did not have to tape it. He insisted.
#TheseAreWaysToHelpAtHome
 

*******************
In case you are new here: “I tell stories, most of the time; single individual stories about this or that. Some may be written with humor and some may come across as “Oh, look at the cute thing DC did or said” (he does crack me up at times) but my object is always to make people understand how his mind works, never to "make fun of him"
It is difficult to explain “his” autism to anyone without resorting to 1000 examples and 1000 stories. So I tell 1000 stories to make clear that there are other sides to autism than the characters seen in TV or movies."
This blog is used for shorter posts, off topic posts and also for longer Face book statuses. Please visit my official blog site at: Taking it a Step at a Time 




Thursday, May 21, 2020

Quarantine Diaries - Part 10: Pizza, Planting and Friends




Since my venting post last week, things have been better. Maybe because I got all of my complaining out of my system - I don't know - but it's been better.

 DC has moved up to cooking videos on YouTube. This is new. He normally watches nothing but clips of movies or songs that he likes.


So far, the cooking tutorials seem to all be about pizza.

I think he’s trying to tell me something....


After watching these videos, DC decided that he wanted to make pizza. 

So no one laugh but I may or may not have mentioned that DC has been watching cooking videos on YouTube (mostly pizza making). He wants to make pizza (no I am not making dough - I don’t even have flour here as I don’t bake) - Doug went  and bought a pizza kit, containing dough, cheese and sauce but no instructions.


So how do I make this?

Listen, I need a package that tells me oven temperature and the cooking time to make anything. You can't just give me a kit and expect baking to happen! You just can't!
With a little help from my friends, we made the pizza the next day. 

Success!

A few 'not so bright' spots of the week:

We had a Board meeting (virtually) on Monday and voted not to open the summer camp this season. It was a difficult decision but the right decision for the times. DC loves going to camp - even just the two days a week that he attends now that he "has a job".

DC got used to all of the cancellations when they happened at the beginning of the lock-down, but now some of the things that were rescheduled for a later date are also being cancelled for the year and it is sad for him.

The second cancellation this week was the PRIDE Parade that his Winter Guard team marched in last year and was scheduled to participate in this year. It was originally scheduled for June and then rescheduled for August. It too has now been cancelled for 2020 all together. Again... disappointing but necessary.

2019 Pride with the directors, his friend *Sally and DC


DC made a mouse mask for his next Story-Time Video with the mask kit that his Aunt bought  for him.




 (The Lion and the Mouse video is posted on the other blog - in Quarantine Diaries - Part 9)

We started putting his Wizard of Oz garden back together.
We planted.
DC got his hands dirty (Yikes!) but he continued helping (more growth).
There are more pots to fill but we ran out of dirt, so we will continue working on it next week.



It will all look much better when the flowers begin growing over the sides of the pots.

DC's friend, BB and his mom came by for a quick front yard visit today. They brought DC his favorite “Black and White” cookies. 



DC is really missing his friends. 
This made him happy.

A few hours later, we were to attend "The Sabrina The Teenage Witch" virtual cast reunion AND a one on one conversation with the Quizzmaster (Alimi Ballard)

More about that in Part 11.

Tomorrow we will be my second attempt at cutting DC's hair. I think maybe I have the hang of it now.

Wish him luck anyway.

****

****

In case you are new here: “I tell stories, most of the time; single individual stories about this or that. Some may be written with humor and some may come across as “Oh, look at the cute thing DC did or said” (he does crack me up at times) but my object is always to make people understand how his mind works, never to "make fun of him"


It is difficult to explain “his” autism to anyone without resorting to 1000 examples and 1000 stories. So I tell 1000 stories to make clear that there are other sides to autism than the characters seen in TV or movies."

This blog is used for shorter posts, off topic posts and also for longer Face book statuses. Please visit my official blog site at: Taking it a Step at a Time 






Friday, May 15, 2020

Quarantine Diaries Part 8: Bald and Toothless



I confess that there is a little (a lot) of venting in this post. Everyone needs to vent once in a while, so I will be doing just that.
One cannot vent without using run-on sentences.... just so you know.
 ****
The day after Mother's Day....


DC: Goodbye flowers.

Goodbye grass.

Goodbye sun.

Me: What are you talking about?

DC: Mother’s Day is over.
Me: What did you do?
He took down the picture he drew for me yesterday, crumpled it up and threw it away...
because Mother’s Day is over. ðŸ˜¢
***
It’s supposed to climb into the 80’s next week so DC and I have to go for a walk or something so Doug can come in put in the A/C because ... I just can’t deal with heat on top of all of this. DC walks by the AC on the floor in the living room and just stares and points. He’s not happy.
I, on the other hand am not looking forward to the constant “Hair-dish-on” conversations we will be having hourly once it goes in, but seriously, I just can’t not have it in and ready. #IsItHotInHereOrIsItJustMe

***

When we got home from our walk - I had to use the very last few sprays in the lysol can to spray the air because Doug had been inside of the house (He wore a mask, but still) and wipe down everything he may have touched and move everything that I had moved out of the way, back to where it belonged because DC wasn't having all of these things "out of place". 

While I was trying to do all of that because he was complaining, he also wanted to "pug in" his phone and stood there complaining about that and "put everything back" until I got the book case back where it belonged so he could do that.
***

Doug decided that he would get us lunch, as an apology to DC for putting the A/C in and also to give me a little break so there was someone else there for DC to ask all of his questions to (that never works, but it was worth a try). He wanted to meet us at the park to have the lunch but I did not want DC to sit at or touch the picnic tables so we opted for the back porch.
This is the first time we have been all together for a meal since March 22.
***

DC also has a new and improved pronunciation for the Air Conditioner... He's gone from "Hair-dish-on" to "Hair-dish-a-ner" - closer, much closer. I know this because I have heard it many many times since the air conditioner went in.
***
Just to be clear; I am not complaining about him at all. I know this is difficult for him, I do. I get it and try to be as patient as humanly possible. He has his moments and so do I.
****
During the first week of lock-down, I broke a crown. It just snapped right off and it hurt like hell for a couple of weeks. I did not want to have to go to the dentist during all of this and since I cannot go anywhere without DC, I certainly did not want to have to bring him to the dentist with me.
Because of this, I had to make sure to chew on the other side of my mouth - long story short, I have a big implant that spans the space of two or three teeth on that side but when I chew on that side, it feels as if the bottom tooth is going to break because as I was  told after they put it in, my bottom tooth can't support that big implant (and you wonder why I hate the dentist). So far that bottom tooth is holding up but because I am trying not to chew directly on it, another tooth chipped, which kind of hurts when cold or air hits it.
****
Somewhere around week two, I broke my toe. This is not something unusual for me. I have broken it so many times that the smallest bump breaks it again. Fortunately I did not have to go anywhere that required me wearing a shoe.
When the toe finally healed,  I broke the other one on the other foot.
Both the same way... hitting it on the coffee table. That one is still on the mend but I can wear a shoe and once I get walking, it starts to feel better.
It did put a bit of a damper on our daily walks.
***
Next, I threw my back out trying to clean under the couch cushions (they are big and heavy), so I had to be careful for the next few days so I didn't do any more damage. It still hurts if I move the wrong way.
***
I may have mentioned in an earlier post that there is construction going on in the apartment next door (We live in a duplex). This began the 2nd week of the lock-down, when were were woken up at 7:30 am to the walls shaking and what sounded like demolition. Not just noise, I can live with noise, but the crew taking a sledge hammer to the bathroom.
No notice, no heads up.... nothing.
We had no idea what was happening.
This went on for about 4 weeks.
****
We woke up one morning to no water. They just turned it off!
DC was freaking out because there was no water. Due to the fact that there were also town trucks in the road doing something, I had no idea if they were working on a water main or if the "construction" crew had shut it off.
I ran outside and went to the garage next door and yelled into it "Why don't we have water?"
The "construction" guy said "Oh, I am installing a hot water heater and I had to turn it off. It will only be off for a few minutes!"
"How the F#&% would I know that unless someone tells us ahead of time?" (I've been done being nice for quite awhile now, so there were a few more choice words for him before I went inside to calm DC down)
He looked at me as if I were the one with the problem. This was the same man who on day one of demolition, came to my door - no gloves, no mask and wanted to come in to look at my bathroom!
At that time he also looked at me as if I were the one with the problem! It's a QUARANTINE!
****
We had a two week reprieve from the construction and I thought after 4 weeks they were finally finished, but no...
they are back once again with no notice and no heads up.
You can't imagine how much all of this affects DC (and me). 
We are trapped here all day every day with all of this going on. It's not right.
That apartment had been empty two months before the quarantine began. My landlord is an electrician and owns his own company. The people who are working next door are not construction workers, they are his electricians. He is probably using then as he always seems to use them - to paint, trim trees or whatever needs to be done, so he has an opportunity for cheap labor and is taking full advantage of it.
****
I have lost all capability to concentrate on anything.
Our office is closed but I have been called upon to do many tasks since it's closing.
I don't have all of my files and I don't receive all of the information I need, so it is a struggle. I am getting more and more anxious every day due to everything that is being thrown at me and knowing that because I don't have everything I need, my system is a mess. All I can think about is how much of a mess it is and am terrified I will miss something important. 
Over and above not being able to get organized and just sit down and start from the beginning to make everything right, when I do try, I have DC asking for lunch and what's for dinner before he's even had lunch, sticking head bands in my hair and whatever else he decides he's going to do while I try to work, random construction sounds that at times make both of us jump out of our seats, and my remote access system going down many times daily  - I'm spending much of my time just pacing.
***
Over the past few years I have thought about dying my hair gray. I have ugly gray. I want nice gray.
Since I was not going anywhere anyway, I decided that this quarantine provided me the time to do this.
I ordered color remover. 
I have used it before so I know it doesn't remove everything.
It came out  white (on top, where the dye was new), orange and brown. 
I ordered more, but since hair dye is not a necessity, it took a good two weeks for it to arrive.
I did it again, but it was a different brand and did not take much more of the color out.
I waited through a few days of conditioning and tried the gray.
It came out brown with gray on top (the gray stripe on top was what I was hoping to avoid by dyeing it gray). Brown with a gray stripe was not an option.
I ordered more.
Two weeks later, I tried it again. Back to white, orange and lighter brown.
Then I chopped it off up to my shoulders since the older, hard to remove dye is towards the bottom.
I almost took DC's clipper to it and just shaved it off. It was plugged in and in my hand. If it had been earlier in the lock-down I would have done it (my hair grows pretty fast) but the state is making plans to open up in phases and I don't know when I will have to go back into the office so I stopped myself.
More remover ordered.
At this point I've given up on the gray (maybe) and have no idea what I am going to do with it once I remove more color, but I could very well come out of this quarantine bald and toothless the way things are going.
***
On the upside....
I did learn the correct spelling of quarantine, so there's that.


Quarantine Diaries - all



*****
In case you are new here: “I tell stories, most of the time; single individual stories about this or that. Some may be written with humor and some may come across as “Oh, look at the cute thing DC did or said” (he does crack me up at times) but my object is always to make people understand how his mind works, never to "make fun of him"

It is difficult to explain “his” autism to anyone without resorting to 1000 examples and 1000 stories. So I tell 1000 stories to make clear that there are other sides to autism than the characters seen in TV or movies."
This blog is used for shorter posts, off topic posts and also for longer Face book statuses. Please visit my official blog site at: Taking it a Step at a Time