Mom to an adult child with Autism - This Blog is made up of shorter posts and longer Face Book Statuses.
Wednesday, April 10, 2019
Just a Little Story about Coats and Jackets
DC has a jacket from his Winter Guard team that he LOVES. He insists on wearing it everywhere. He also has the newer version of the jacket which he likes but it does not come close to the older version; windbreaker, lined with hood. The thing is OLD and is falling apart. Since he won't give it up and they don't order this type anymore, I found some sort or repair patch for the giant hole along the hood line...
I told him I was going to fix it and he needed to leave it alone for two days while the patch set. No Problem..
This morning I told him he could wear his jacket again.
"I don't want to wear it"
sigh..... Did I ruin it by fixing it?
I can't get an answer.
#AwarenessMonth - FaceBook Status 4/10/19
Later:
Coat/Jacket Update:
DC's refusal to wear his favorite Winter Guard Jacket was due to the expectation of it being cold out (it isn't) and wearing his other Jacket./Coat obsession... The Dreaded Brown Corduroy Jacket.
Let me tell you about THIS jacket:
It is OLD. It is ratty looking. The lining no longer looks clean after washing. He Loves it. It is his in-between season coat. It is warm enough for mild winter days and the colder part of spring and fall.
Years ago DC had a brown corduroy jacket that he was very attached to. He was getting small and a little worse for wear, but I could not get him to part with it.
One day about 8 years ago, he went out for the day with his friend BB and BB's mother. DC left the jacket where ever they were. I was happy, but BB's mother insisted on replacing it. I told her that I was glad it was gone, but she insisted and 8 years later, I am still trying to get him to give it up.
So I did not "ruin" his Winter Guard Coat by fixing it - he just has something else in mind.
The Brown Coat is going away for the season and he opted happily for his Winter Guard coat.
#Awareness #ClothingIssues - Facebook Status 4/10/19
*****
This blog is used for shorter posts, off topic posts and also for longer Face book statuses. Please visit my official blog site at: Taking it a Step at a Time
Saturday, January 5, 2019
Snowvee, Miss Snap, Teacher, Good Time ..... Anyone?
![]() |
| CC0 Creative Commons Free for commercial use No attribution required |
Okay. Help!
DC is looking up something on YouTube.
He asked me how to spell what sounds like “snowvee” (apparently a character).
Usually if I can’t understand the character’s name to be able to spell it for him, he can come up with something else to help.
What I have:
Snowvee (sounds like)
Miss Snap (or Slap or something that sounds like either or both)
Good time
Grandmothers old house (which means that is where he used to watch it - so it’s been 10 years or more - could be as long ago as 25 years)
(Yes, I tried googling all of the above)
My mother can remember it vaguely but not the name or characters, but she does think that it was about a teacher.
Anybody????
#ThisIsSerious
#Help
Facebook Status - October 2018
This has not been resolved.
The Number One suggestion was "The Magic School Bus" but he says, NO.
Also in the "No" pile....
Chalkzone
Scooby
and a bunch of others I had never heard of.
There is a Miss Snap from "Teachers" which does not fit the time frame but he said "No".
*****
This blog is used for shorter posts, off topic posts and also for longer Face book statuses. Please visit my official blog site at: Taking it a Step at a Time
Friday, November 30, 2018
Rudolph's Santa???
DC, while purchasing his 16th copy of Rudolph The Red Nosed Reindeer at his favorite “away for the weekend, day after Thanksgiving store”, turned to me and said
“Santa was not a very nice man”.
I was a little surprised by that and asked “what do you mean?”
He pointed to his Rudolph book on the counter and said again, “Santa was not a very nice man”.
And you know what?
DC is correct.
Santa was not a very nice man in his treatment of Rudolph and Hermey, for being different.
In the end, Santa did not really learn anything and it was only because he needed their help that he decided to accept them.
I was kind of impressed (and sad at the same time) that he recognized this.
It's funny the things we never think about in all of these old Christmas stories.
I kind of felt bad that we've always thought of these stories as classic and "heartwarming" Christmas tales. Here we are cheering on Santa for finally coming around to common human decency.
We've come a long way over the years, not quite far enough, but here's hoping. .
#Rudolph #SantaDidNotLearnAnything #FeelingDisapointedInSanta
Facebook Status 11/2018
This blog is used for shorter posts, off topic posts and also for longer Face book statuses. Please visit my official blog site at: Taking it a Step at a Time
Friday, November 2, 2018
Mom! I am getting very nervous about this!
The clocks go back one hour on Sunday.
This does not mean I will actually get that extra hour of sleep, but as every year, I will try to be optimistic and look forward to it until it does not happen.
One day I will be surprised and DC will sleep the extra hour.
As the days grow darker and shorter, I can predict exactly what will happen around here besides me not getting to sleep that extra hour -
Oops, I lost that optimism for a minute.
Okay, I am back.
Although DC is getting a little better at reading the clock and telling time, the clock and what time the clock reads does not have much of an effect on him as you might imagine.
He does not get upset if the clock is wrong (as he does when the calendar is not changed immediately)
He will not notice if I forget to change one (again; unlike the calendar).
He will still ride in my car, where the clock is almost always wrong.
This might lead you to believe that I am home free with the whole clock/time change.
Wrong.
Although the actual "clock" time does not mean all that much to DC; he does have a pretty good internal clock.
It is going to get dark earlier.
He is going to notice.
He will be at the door as soon as he notices that it is getting dark way ahead of his schedule.
He will be convinced there is a storm coming.
Every day.
For weeks.
No amount of explanation ahead of time, keeps this from happening Every . Single . Year.
No amount of explanation while he is opening and closing the door 20 times every night, will change this.
Mom! I am getting very nervous about this!
We just have to ride it out along with him waking up an hour early until he gets used to it.
I'm not a fan of the time change.
And......... Don't forget to Vote on Tuesday!
*****
This has been a Finish the Sentence Friday post. This week's prompt "As the days grow darker... "
Finish the Sentence Friday is hosted by Kristi at Finding Ninee and Kenya at Sporadically Yours
Finish the Sentence Friday is hosted by Kristi at Finding Ninee and Kenya at Sporadically Yours
This blog is used for shorter posts, off topic posts and also for longer Face book statuses. Please visit my official blog site at: Taking it a Step at a Time
Wednesday, October 31, 2018
Halloween - Please Be Kind #autism
DC always enjoyed the costume and candy part of Halloween, but it took years before he really understood the waking around to get said candy and years after that before he understood that he could not walk into people’s houses.
He could not understand why we were ringing the doorbell and not going in.
Halloween, now is his absolute favorite.
He has a costume for every party and another for the big day.
I don’t feel that I should have to take that all away from him because some people see him as “too old” to trick-or-treat.
Like many children and adults with autism, his interests are limited and when he really shows an interest or enjoys something out of what would normally be thought of his “comfort zone” - you better believe that we are going for it; all the way.
Please be kind if an adult in costume comes to your door, or a child without a costume due to sensory issues.
Their parents will handle it if they try to walk into your home or don’t understand “take one piece” - Not having the ability to say “Trick-Or-Treat” is okay too......really. Don’t try to force it.
It IS everyone’s Halloween. #Autism #Halloween
Facebook Status 10/31/18
****
This blog is used for shorter posts, off topic posts and also for longer Face book statuses. Please visit my official blog site at: Taking it a Step at a Time
Thursday, October 11, 2018
Tuesday is the new Monday
Never in a million years could I ever have imagined that DC would actually LIKE Unified Sports, Cross Country.
Never.
I can't even tell you how many years he has been participating; I have to imagine it's been quite a few (Ms. "No Sense of Time" at your service)
I originally tried it with him because all of the other sports he participated in had either gone away, he aged out of or he just got bored.
He aged out of Challengers baseball at 21. Not that he was a huge fan of baseball but when he was young, there were really no other programs - sport programs or recreation in general, for him to participate in, so he played baseball for 16 years.
He really enjoyed Special Olympics Swimming and participated there for a good 10 years, if not longer but that program went away in our area.
He also participated in Special Olympics Golf, but he was too slow to play "Alternate Shot", where an athlete and a buddy pair up on the course so he participated in the "skills" program.
10 years hitting balls on the driving range with no chance to compete on the course just got boring for him. I don't blame him.
There needs to be a level in-between "Skills" and "Alternate Shot" - just sayin'.
With nothing else to try, we decided to give Cross Country a shot. If nothing else, it would be good exercise.
Well.... he liked it and has been participating ever since.
This year, though.....
This year, he went from liking it to LOVING IT. So much so that he gets very upset when it gets cancelled.
Unfortunately, we've had a rainy go of it this season.
Facebook Status: September 18, 2018
It’s 6:00 am and this “boy” has been following me around, asking about practice (which is about 12 hours from now) and just staring at me for the last 45 minutes. As I type this, DC is about 6 inches from my face - staring.
He woke up and started immediately.
He won’t understand that I will not know if cross country will be cancelled for rain until later in the day.
I’m thrilled that he loves cross country as much as he does (who could have ever seen that coming?) but the downside is the anxiety about cancelling from the moment he wakes up every single Tuesday.
Tuesday seems to be our new Monday
#MondayMeltdownsHaveBeenRe
***
Facebook Status September 25, 2018
Same boat, different week (same day) - It's pouring- sigh.....
#TuesdayIsTheNewMonday #StopRainingOnTuesdays #JustStop
***
Facebook Status October 2, 2018
So........
It's Tuesday
It's Raining
"Cross Country Practice Cancelled?" (repeat 694 times)
#StopRainingOnTuesdays #Autism #ThreeInARow#SameDayDifferentWeek #TuesdayIsTheNewMonday
****
Facebook Status - October 8, 2018
Tomorrow is Tuesday and for the first time in 4 weeks there is no rain predicted.
Although he is getting so used to it raining and his practice getting cancelled that he will probably be in my face about it anyway .... fingers crossed, people!
#TuesdayIsOurNewMonday
#StopRainingInTuesdays
Tuesday Morning - October 9, 2018
aaannnnnd....... It's Raining!
#StopRainingOnTuesdays
***
Facebook Status
Happy Tuesday!
Random Tuesdays
Facebook Status
It's pouring.. POURING!
DC was ready at the door wearing his raincoat (me? no. I wasn't going outside yet).
When the car arrived, he ran out and I stood in the door as always.
I saw him flagging we to the car, which he never does. Thinking something was wrong and not wanting to waste time looking for my umbrella, I ran to the car as I was. Opening the door, DC said
"Mom! It's raining! Sorry!"
(of course he let me stand there in the pouring rain for a little while before he came out with that)
... Happy Tuesday!
****
Facebook Status
Morning Jump-Start:
DC (eating breakfast): Mom, I feel so 'Vy-lated'.
Me: WHAT???!!!???!!! What do you mean?
DC: I feel so 'vy-lated'
Me: What do you mean!?!?
DC: Faerie Tale Theater
(Hansel and Gretel to be exact)
Geez....
Happy Tuesday - my heart is beating again, thank you.
~ Not that he had any idea what violated means, but hearing it come out of his mouth - unsettling, to say the least.
****
Facebook Status
Today, is DC's Monday
Mornings in General are hard, but Mondays usually do me in.
Today was not going badly at all but waiting for his transport, I could see the mood change sweep over his face. I know it was because he wanted to write more "Princess Papers" and I did not give him enough of a heads up to put everything away.....
Fortunately, even with the angry eyes, there wasn't a big outburst; but he was agitated.
I am sure that the driver at this point is able to tell his mood by the way he walks out to the car when it arrives.
When he turns around to look at me BEFORE he gets in the car, I know he's coming back to the door to me to stim about whatever is bothering him. Some mornings he comes back more than once.
Today he got to the car door, turned to look at me and stomped back to me still standing in the doorway - angry eyes and all. I opened the door and he yelled angrily "Not 'Crappy" anymore!!!" (crabby) and stomped back to the car.
Not very believable, I must say.... but..... it didn't go on forever and he went right back to the car, so I am putting a mark in the "win" column. Happy Monday (Tuesday)!
****
Facebook Status
Tuesdays are really just Mondays all over again..
Thursday, September 27, 2018
Image Unavailable - Insert Photo Here
There are times when I have go and to look at my photos to remember what day, month or year we did something that I am trying to remember. I have no sense of time.
This happened just a few days ago and to my utter shock, I discovered that ALL of my photos were missing from the photo folder.
There was nothing!
Nothing!
Panicked, I began searching my computer, every file..... inside every file.
Maybe the file got moved.
The file was still there but empty - so logically, it did not get moved but I was determined to search every file anyway.
Before anyone says "Don't you have a backup?" - yes, I do and that was my next step.
I went in and ran a restore. The restore duplicated the 6 photo files I had copied to my desktop in anticipation of adding to the #TravelingWithDC series and a few other files that had some screen shots and photos used on past blog posts, but the photo file did not come back.
There was nothing....
During my panicked (and very loud) search, Doug said "Yeah, I noticed that the other day".
Which led to my "That's it! No one touches my computer" rant.
After the search and the rant (which was much longer than "no one touches my computer"), I needed not to think about this for awhile. My brain was on overload and I was heartbroken.
I needed not to think about it.
This, of course is when Doug decided it was a good time to read all of the 798 reasons and "fixes" that he googled.
Dude......
The few snippets I did hear, while yelling at him to stop reading them to me were:
1. Some sort of virus that renders your photos invisible. They are still there but in a format that can't be seen????? I was trying not to listen so I can't even tell you if this a a real thing.
2. Some sort of storage issue that knocks your files off of your computer with no warning.
(Great, I just restored and duplicated all of those files that I did not need, probably pushing more files off the computer)
The next day Doug spoke to a computer guy here in town and the latter, although I am sure there is more to the explanation than the the way I just explained it, seems to be a real thing.
Great! Did I mention that I did a "restore" and duplicated all of the files I already had?
We will be away for the weekend so the computer is going to the shop while we're gone.
I thought it would be better that way, because autism is a factor in every decision.
There was one day awhile ago when I shut the computer down in the morning for some reason - probably a storm. I notified DC's after-work staff that I had shut down the computer. Even though my screen goes black on a regular basis when it goes into sleep mode, DC with his ability to notice when anything changes, even when the changes are not noticeable to anyone else, WILL notice that it is off as soon as he walks in the door. He does not use my computer but it will bother him that it is off. I just wanted her to know and be able to tell him that I would turn it back on when I got home, so he would not haunt her about it until I came home.
It was in fact the first thing he noticed when he came home that day.
If the computer being off bothers him, then the computer being GONE would just put him over the top.
So I decided to wait until the night before we leave so I won't have to listen to too much computer angst before we go.
On the "bright side", Doug remembered that when I bought this computer and transferred everything over from the old computer, there were a few of his files missing. He had our old computer guy go back in and put everything on a flash drive.
He still has that flash drive and it does hold all of my photos through 2015.
So there's that, but we've done a lot of things and gone a lot of places since 2015 and it is going to be heartbreaking if all of that is lost.
Another bright side (sort of) is that I do post photos on Face book. All of them? No, but a few of each event or trip.
Am I looking forward to going through 3 years of face book photos? No. But at least if all else fails, I will be able to get a few of the important events and places back.
So.....
Please! No One Break Face Book While I'm Away. Just Don't!
****
This has been a Finish The Sentence Friday post. The prompt this week is "Share a Photo and the Story Behind It". Finish the Sentence is hosted by Kristi at Finding Ninee and Kenya at Sporadically Yours
******
This blog is used for shorter posts, off topic posts and also for longer Face book statuses. Please visit my official blog site at: Taking it a Step at a Time
Subscribe to:
Posts (Atom)














