Wednesday, March 8, 2017

Let's Talk About Inspiration Porn...

Updated - April 2, 2018 to add:

I just saw the first "Inspiration Porn" Prom proposal of the season in my news feed today. The issue of Inspiration Porn is not strictly related to Autism, but since it IS Autism Awareness Month, I felt the need to post this again.... You are NOT doing a wonderful thing for someone if you have to share the video of that wonderful thing you've done with the world. You did it to make yourself feel like a hero. A real hero does not need to broadcast...

Facebook Status April 2, 2018


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From My Facebook Memories one year ago - (later, I read a post from my friend over at Running Through Water:- about this very same clip. Her post is linked at the end - give it a read)
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Whether they meant to or not..., they nailed it! SNL, nailed viral disability videos and inspiration porn .... 

- Asking someone to the prom does not a hero make. Making it a video using the boy with autism which then goes viral, does not a hero make. 

 -An employer standing up for his employee, by posting the story on Facebook 'after the fact' without asking the customers to leave at the time of the incident - does not a hero make.

- Using that same employee in an article that states many many times that his employee "suffers" from autism - does not a hero make.


- A football player eating lunch with the poor autistic boy (oh, but wasn't that so nice of him? As if the boy does not deserve to have lunch with anyone) - does not a hero make.





From Facebook Statuses at Take Another Step

Because I am a bit vocal about my aversion to inspiration porn, I have received a few comments about a post I wrote a few years ago, thanking a restaurant for going out of their way to do something nice for DC. 






Yes, I wrote it.

Yes, I thanked them..... profusely!

Here's the difference though.


" I " wrote the Facebook post and the blog that came later.



" I " thanked them.


I asked them about the character. They chose to go out of their way to do this for him.
DC was sitting at the table and not even with with me when I was talking to the waiter.
They did not know of his autism, although I am sure they figured it out by the time Shrek arrived.
It was a nice thing for them to do for ANYONE and anyone (I would hope) would have thanked them.

More importantly:


THEY did not post it to social media in order to pat themselves on the back for doing this for him. I patted them on the back for going out of their way for their customers and my child.

There lies the difference. My son was not used as a pawn for a pat on the back. They did this because they are wonderful people. They did not expect anything in return. 

It was a nice thing to do..... period. When someone goes out of their way for my child, I will thank them as I am sure most of you would.....

(You can read the full story here) - The Honorary Swamp Guard


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As promised, that post from Running Through Water that I mentioned above.

That one time Saturday Night Live was super un-PC and it worked…



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This blog is used to copy my posts (as back-up) from my official site and also for longer Facebook statuses. Please visit my official blog site at: Taking it a Step at a Time









Friday, March 3, 2017

It's Friday!!!!





The first thing DC said to me this morning (very loudly and very happily) "It's Friday!"

Now DC is and always has been calendar obsessed, but usually due to #ItsWhatsNext not really about a certain day of the week.

Unlike most of us, DC has never gotten more excited about Friday or Weekend Days than any other day of the week....

He went to school and now to work 5 days a week and had/has two days off on the weekend. To him, this is just the way things work and there is no more excitement (or dread) about the work week than there is about the weekends. It's just how it is. 

This morning he surprised me with his over the top excitement about it being Friday. I heard about it over and over again (as did the neighborhood, I would assume). I did not get any explanation for this exuberance..... but it was definitely something new.


In case there is anyone that did not hear him this morning, Happy Friday!


#HeMustGetThatFromMe #TGIF

From Facebook Statuses at Take Another Step


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This blog is used to copy my posts (as back-up) from my official site and also for longer Facebook statuses. Please visit my official blog site at: Taking it a Step at a Time




Friday, February 24, 2017

Calendars and #ItsWhatsNext



August:
DC has his favorite places to buy used books. He had been bugging Mrs. H to go to one specific store all summer. She told him (because on camp days there isn't a lot of time left over after she picks him up from camp and gets him home) that they would go 'one day' when camp ended for the summer. Well camp ended on Friday and this morning DC made it known to me that he had added it to the calendar for this afternoon - the very first Monday of no camp. If it's on the calendar it is engraved in stone.


Today:


Valentine's Day is over (all I heard about since the calendar changed to February).

Dinner with BB and his family is over (all I heard about after Valentine's Day was over)...

Moving on to "DC's 'Twenty-Sixteenth' Birthday is coming soon" (it is weeks away)

Apparently, we are skipping right over mine..... #ItsWhatsNext



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Previously on Calendars and It's What's Next:

Earlier this month - February:


Clearly, DC was distracted this morning... He didn't even think about changing the calendars until 730am! Usually it's his first thought in the morning. Not to worry though, they all got changed over and the Happy 'Val-lum-times' Day greetings are well underway...#ItsWhatsNext


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"Mom! Happy 'Val-lum-times' Day coming soon two weeks!" 
(Repeat every 10 minutes) - in case any of you were not aware and need to update your calendar......
You are welcome! #ItsWhatsNext


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November:


He actually waited until this morning to change the calendar ..... we're moving on....

Calendar changed by 5:45 am
Thanksgiving Reminders began at 5:46 am #ItsWhatsNext

Facebook Posts at Take Another Step

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Dc just walked in the door. He's no longer talking about 'Fanksgiving' - he has resorted to just pointing at the date on the calendar until I confirm... 
One......More......Night of this and it's over until he finishes eating tomorrow when he will move on to "Going home on Friday" and then on to "Christmas is coming soon" 24/7
#ItsWhatsNext


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As predicted... dinner over ....
"Mom, we are going back home on Friday" - repeat, every half hour. #ItsWhatsNext



We arrived home less than a half hour ago...
"Mom! I am so exciting for Christmas is coming soon!"
#ItsWhatsNext


Facebook Posts at Take Another Step

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December:

*All Calendars changed by 5:45 am.
*One lost thumbtack.
*One 'boy' who would not get in to the shower until said thumbtack was found and calendar re-hung.
*Found another thumbtack to hang the calendar to get him in the shower.
*One shower taken
*One lost thumbtack located (ouch!)

*First reminder of "Christmas is coming soon, later after that"
Happy December!



This blog is used to copy my posts (as back-up) from my official site and also for longer Facebook statuses. Please visit my official blog site at: Taking it a Step at a Time



Wednesday, February 22, 2017

You're in my spot #YoureInMySpot

Today:

We all know that DC has his "spot" at the kitchen table. No one can sit in his chair, nor can one put anything down in his spot. Next to his spot is another chair that holds the books he must have beside him when he is in his "spot" (so technically he had two spots). 
This morning DC was putting on his shoes while sitting in "Spot Number One" while I was LEANING on the chair at "Spot Number Two" ....... Leaning. 
DC: Mom, something is bothering 'you'.
Me: What's bothering you (not expecting to get an answer other than "Nothing wrong") -
DC: My chair!
(He told me what was wrong!!!!!)
#NoSpotsLeftForMe #HeIsTakingOver


From Status Posts at Take Another Step

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Previously on "You're in my spot" 


Doug brought his laundry over. DC was sitting in the kitchen on his computer in "his spot". Doug put his unfolded laundry on the couch. DC, done with the computer, decided he would come and sit on the couch in the spot which is also his... He stood there and pointed until Doug moved his laundry to the kitchen, unfortunately to the chair that DC just vacated. DC could not relax in his spot in the living room while Doug's clothes were in his spot in the kitchen. This is a picture of DC waiting and watching while Doug folded his clothes. He did not leave the doorway until all of Doug's laundry was out of his spot.... #IGuessWeKnowWhoIsInChargeHere


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Because no is allowed to sit in his chair in the kitchen (even if he is not in it) or his "spot" on the couch, I thought we'd make it official. #bigbang


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Doug, who can't seem to get over the fact that DC needs so many black sharpies (we've been over this) decided to #1. Sit in DC's chair and #2. Pull all of his black markers out to show me (as If I didn't know) just how many he has just in the cup on the table. 
DC was getting anxious so I told Doug to just put them back and get out of his spot. Well apparently, Doug not moving and not putting them back in the cup properly (forgetting to lay out a chosen few on the table) was too much for DC to bear so he climbed right over him as if he wasn't sitting there to "fix" it. AND #YoureInMySpot 

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This blog is used to copy my posts (as back-up) from my official site and also for longer Facebook statuses. Please visit my official blog site at: Taking it a Step at a Time

Thursday, February 16, 2017

'Val-lum-times'

A few Facebook statuses from and about Valentine's Day.


"Mom! Happy 'Val-lum-times' Day coming soon two weeks!" 
(Repeat every 10 minutes) - in case any of you were not aware and need to update your calendar......
You're welcome!
#ItsWhatsNext 
#HappySaturday

From Take Another Step Facebook Page


From 3 years ago #Bacon

From Take Another Step Facebook Page

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This boy loves his Jelly Beans. 
These will last a bit longer than usual as he has to read each and every one to me before eating.
Happy Valentine's Day! #valentinejellybeans

From Take Another Step Facebook Page

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It's been a (insert expletive of your choice here) week, but these made my day! (Flowers from Best Buddies Flower arranging class on Wednesday and cards from Camp party) - #earlyvalentinesgifts 
Happy Valentine's Day

From Take Another Step Facebook Page

And this year:



DC just presented me with this beautiful fake flower that he pulled out of an old party favor arrangement that I had sitting on a shelf. 
Happy Valentine's Day! 
#ItsTheThoughtThatCounts


Oh, and a heart eraser that he got at his camp party last night.




 But wait, there's more.... a note on his grocery list 

I'm wondering now if the note to me on his shopping list was really not a note to me at all but an addition of an item on his shopping list. Hmmmm.

From Take Another Step Facebook Page

(FYI, I was correct, he did add it to his list because he wanted to buy me a heart. I thought originally that he just picked up the first piece of paper that he could find to draw me a heart)

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In case you are new here: “I tell stories, most of the time; single individual stories about this or that. Some may be written with humor and some may come across as “Oh, look at the cute thing DC did or said” (he does crack me up at times) but my object is always to make people understand how his mind works, never to "make fun of him"

It is difficult to explain “his” autism to anyone without resorting to 1000 examples and 1000 stories. So I tell 1000 stories to make clear that there are other sides to autism than the characters seen in TV or movies."\
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This blog is used to copy my posts (as back-up) from my official site and also for longer Facebook statuses. Please visit my official blog site at: Taking it a Step at a Time

:) ❤❤

Sunday, February 12, 2017

The Struggle is Real - More about the 'Wea-ver"

Facebook Statuses Concerning the "Wea-ver"




Another morning of listening to "No 'Wev-Ver', No Wev-Ver'!!!" - while watching for delays and/or cancellations (freezing rain).
For those of you who are new here... I can not watch the weather without DC yelling about it because apparently not watching will keep any storm away.... The news? Nope.. the news is related to the 'Wev-ver'.... Not allowed.

#NoNewsIsGoodNews 

From FB Statuses at Take Another Step

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"No 'Wev-er'! Change the channel!" (I had to check for delays - I'm not allowed to watch the news because news means weather and weather means "storm") 
"I DON'T LIKE THE 'WEV-ER'!
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Then he found a hole in his sock ..... (sigh)
We've been up for all of 45 minutes - Friday has certainly started off with a bang!


From FB Statuses at Take Another Step

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And now for our weather update...

From FB Statuses at Take Another Step

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Thunder - he's "Ted-a-fied" but won't come away from the door. #storms

From FB Statuses at Take Another Step

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So it's bad enough that DC is flipping out (and praying in front of the door singing "storm go away - did ee did ee") but then I had to go and scare the life out of him by jumping 10ft and possibly screaming (possibly) at a majorly loud crack of a thunder/lightening combo that took me by surprise .#MomToTheRescue 
#NiceJobKeepingHimCalm

From FB Statuses at Take Another Step

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He can't seem to be able to hear anything I say to him when he is on the computer with earbuds on. But thunder... way off in the distance? No problem hearing at all.

From FB Statuses at Take Another Step

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And we have thunder..... Fortunately I had a spare box of band aids to keep him slightly occupied ------ slightly #LongNightAhead

From FB Statuses at Take Another Step

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For those of you who may be concerned that DC is asleep and missing the 50 mph winds, torrential downpours, flickering lights and the promise of thunder - do not worry - he wouldn't dream of missing it.

From FB Statuses at Take Another Step


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This blog is used to copy my posts (as back-up) from my official site and also for longer Facebook statuses. Please visit my official blog site at: Taking it a Step at a Time